CHARLESTON, W.Va. — Former Air Force Reservist Gale Reid received a letter from the Veterans Affairs Department that told her she had Lou Gehrig’s disease, and she immediately put herself through a battery of painful, expensive tests. Five days later, the VA said its “diagnosis” was a mistake.
The Montgomery, Ala., resident was among at least 1,200 veterans who received a letter about disability benefits for ALS, also known as Lou Gehrig’s disease, even though they hadn’t been diagnosed with the illness, according to the National Gulf War Resource Center.
Veterans were initially suspicious of the letters, but still went through the agony not knowing exactly whether they had the fatal disease, which typically kills people within five years.
At least 2,500 letters informing veterans of disability benefits for ALS were sent out, and of those, some 1,200 were a mistake, according to the National Gulf War Resource Center. The wrongly sent letters were supposed to inform veterans of an undiagnosed neurological disorder, according to the Gulf War veterans group, which provides information, support and referrals about illnesses to veterans.
Former Army Sgt. Samuel Hargrove cried Sunday after opening his letter.
“I can’t even describe the intensity of my feelings,” said the father of two from Henderson, N.C. “With so many health issues that I already have, I didn’t know how to approach my family with the news.”
So, at first, he didn’t. Hargrove later discovered the mistake after talking with fellow veterans in the resource center and online, and he became angry.
Reid was just as upset.
“I’ve been through a week of hell, emotionally, physically and financially,” she said.
Denise Nichols, vice president of the National Gulf War Resource Center, said her group has received calls and e-mails from panicked veterans in Alabama, Florida, Kansas, North Carolina, West Virginia and Wyoming.
Jim Bunker, president of the veterans group, said he talked to someone at the VA and was told the mistake was caused by a coding error. The VA uses more than 8,000 codes for various diseases and illnesses, and veterans with undiagnosed neurological disorders, which can range from mild to severe, were accidentally assigned the code for ALS, he said.
ALS is a rapidly progressive disease that attacks the nerve cells responsible for controlling voluntary muscles.
The veterans groups notified the VA of the problems late last week, and the agency was in the process of calling every person who mistakenly received a letter, Bunker said.
The Gulf War veterans group is urging the VA to reimburse any veteran who scheduled additional tests with civilian doctors. Reid said her tests cost about $3,000, though it may take weeks before she finds out how much her private insurance will cover.
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