Harold Jones receives dialysis treatment at NW Kidney Dialysis Center on Thursday, April 4, 2024 in Everett, Washington. (Annie Barker / The Herald)

‘Silent disease’: Many have kidney disease, but don’t know till it’s too late

The illness may affect 150,000 Snohomish County residents, a local expert warned. Regular visits to a doctor are key to prevention.

EVERETT — Three times a week, a machine cleans Harold Jones’ blood. Jones is squeamish about needles, and the treatment exhausts him. But it’s keeping him alive.

In 2022, Jones found out he had kidney failure, the final stage of kidney disease. His kidneys no longer function on their own to remove waste from his body, regulate his blood pressure or make hormones.

About 35 million Americans are living with kidney disease, but as many as nine out of 10 people don’t know they have it, according to the Centers of Disease Control and Prevention.

“Unfortunately, it’s a silent disease,” said Matthew Rivara, chief medical officer for Northwest Kidney Centers.

In 2019, about 20,500 people in Snohomish County had been diagnosed with kidney disease, according to estimates based on a national survey. But that’s a large underestimate of the actual prevalence, Rivara said. About 150,000 people in the county — more than the population of Everett — could be living with the disease, he said.

In 2020, the nonprofit opened a clinic in Everett, its first in Snohomish County. The nonprofit has a total of 20 dialysis clinics in Washington.

When Jones, 82, was diagnosed as pre-diabetic and later as diabetic, he “didn’t connect the dots” about his risk for kidney failure. Diabetes and high blood pressure, the most common causes of kidney disease, damage blood vessels and cells in the kidneys. Other risk factors include old age, autoimmune diseases and genetic kidney conditions.

“Also, we know from national data that when it comes to severe kidney disease or kidney failure, there are disproportionate impacts for non-white demographics,” said Kari Bray, a spokesperson for the county health department.

The most important step to detecting kidney disease early is regular visits to a primary care doctor, Rivara said. Tests for diabetes and high blood pressure will detect kidney disease. Keeping up a healthy body weight, low-sodium diet and exercise are other preventative measures.

Harold Jones receives dialysis treatment at NW Kidney Dialysis Center on Thursday, April 4, 2024 in Everett, Washington. (Annie Barker / The Herald)

Harold Jones receives dialysis treatment at NW Kidney Dialysis Center on Thursday, April 4, 2024 in Everett, Washington. (Annie Barker / The Herald)

Most people in the early stages of kidney disease feel normal, Rivara said. It’s not until Stage 5, also called kidney failure, that patients begin to show symptoms like fatigue, nausea and diminished appetite. But by then, the kidneys are functioning at less than 15% capacity, and the damage is irreversible.

“We all think we’re invincible until we’re not,” Jones said.

Before his diagnosis, Jones liked to travel, work in his yard and compete in his family’s bowling league. Now, his life revolves around dialysis and recovery.

Each week at the Northwest Kidney Centers dialysis clinic in Everett, a machine pumps out and filters Jones’ blood, one cup at a time. The process takes about four hours. Jones is thankful for his family, who drive him to the clinic and care for him when he needs rest at home.

“This takes such a toll on me,” he said. “But I’m hoping I can get back to bowling soon.”

When it launched in 1962, Northwest Kidney Centers was the first out-of-hospital dialysis provider in the world. The nonprofit now serves 4 out of every 5 people who need dialysis in Western Washington. Most patients get in-clinic treatment, but the nonprofit also has a growing at-home program.

“Right now, there’s over half a million people in the United States getting dialysis who otherwise would not be alive,” Rivara said. “There’s no other technology that can allow people to live and thrive for so long after their organs fail.”

On average, people with kidney disease who start dialysis extend their lives at least five years, Rivara said. Without it, patients typically live weeks to months after their diagnosis.

Jones is on a rotating dialysis schedule with 50 other patients. He has developed meaningful friendships in his two years at the clinic. It’s comforting to meet people who are in the same boat, he said.

“One person, I don’t see around anymore,” he said. “I don’t want to ask the question. It’s too distressing.”

Harold Jones receives dialysis treatment at NW Kidney Dialysis Center on Thursday, April 4, 2024 in Everett, Washington. (Annie Barker / The Herald)

Harold Jones receives dialysis treatment at NW Kidney Dialysis Center on Thursday, April 4, 2024 in Everett, Washington. (Annie Barker / The Herald)

The best treatment for kidney disease is a kidney transplant, but the waitlist can be up to six years. And for patients like Jones, the surgery’s risks are too great. He applied to be a University of Washington transplant recipient, but was denied because of his age and health condition.

Jones wishes he knew more about kidney disease earlier in life, he said. He would have visited the doctor more often, and limited his salt and sugar intake.

While receiving dialysis treatment last week, Jones reflected on his life with his wife of 57 years, who he’s traveled the world with. He talked about his three kids and five grandkids.

“I’ll be doing dialysis forever, or until I … ” Jones paused and motioned to the sky.

“But if I was to leave here tomorrow, I know I lived a blessed life.”

Sydney Jackson: 425-339-3430; sydney.jackson@heraldnet.com; Twitter: @_sydneyajackson.

Talk to us

> Give us your news tips.

> Send us a letter to the editor.

> More Herald contact information.

More in Local News

Snohomish residents Barbara Bailey, right, and Beth Jarvis sit on a gate atop a levee on Bailey’s property on Monday, May 13, 2024, at Bailey Farm in Snohomish, Washington. Bailey is concerned the expansion of nearby Harvey Field Airport will lead to levee failures during future flood events due to a reduction of space for floodwater to safely go. (Ryan Berry / The Herald)
Harvey Field seeks to reroute runway in floodplain, faces new pushback

Snohomish farmers and neighbors worry the project will be disruptive and worsen flooding. Ownership advised people to “read the science.”

Grayson Huff, left, a 4th grader at Pinewood Elementary, peeks around his sign during the Marysville School District budget presentation on Tuesday, Nov. 28, 2023 in Marysville, Washington. (Olivia Vanni / The Herald)
State OKs Marysville plan with schools, jobs on chopping block

The revised plan would mean the loss of dozens of jobs and two schools — still to be identified — in a school district staring down a budget crunch.

IAM District 751 machinists join the picket line to support Boeing firefighters during their lockout from the company on Thursday, May 16, 2024, in Everett, Washington. (Ryan Berry / The Herald)
Amid lockout, Boeing, union firefighters return to bargaining table

The firefighters and the planemaker held limited negotiations this week: They plan to meet again Monday, but a lockout continues.

The Trestle’s junction with I-5 is under evaluation (Kevin Clark / The Herald)
Here’s your chance to give feedback on the US 2 trestle and its future

Often feel overwhelmed, vulnerable and on shaky ground? So is the trestle. A new $17 million study seeks solutions for the route east of Everett.

George Beard poses for a photo outside of the the Stanwood Library in Stanwood, Washington on Wednesday, May 8, 2024.  (Annie Barker / The Herald)
From sick to the streets: How an illness left a Stanwood man homeless

Medical bills wiped out George Beard’s savings. Left to heal in his car, he got sicker. Now, he’s desperate for housing. It could take years.

Logo for news use featuring Snohomish County, Washington. 220118
Lawsuit says Snohomish County deputies not justified in Sultan shooting

Two deputies repeatedly shot an unarmed Sultan man last year, body camera video shows. An internal investigation is pending.

An airplane is parked at Gate M9 on Tuesday, May 21, 2024 at O’Hare International Airport in Chicago, Illinois. (Jordan Hansen/The Herald)
Good luck to Memorial Day travelers: If you’re like me, you’ll need it

I spent a night in the Chicago airport. I wouldn’t recommend it — but with flight delays near an all-time high, you might want to pack a pillow.

toon
Editorial cartoons for Friday, May 24

A sketchy look at the news of the day.… Continue reading

Cascade’s Mia Walker, right, cries and hugs teammate Allison Gehrig after beating Gig Harbor on Thursday, May 23, 2024 in Lacey, Washington. (Olivia Vanni / The Herald)
Seniors Wilson, Tripp power Cascade softball past Gig Harbor

The pair combined for three homers as the Bruins won the Class 3A state softball opening-round game.

The original Mountlake Terrace City Council, Patricia Neibel bottom right, with city attorney, sign incorporation ordinance in 1954. (Photo provided by the City of Mountlake Terrace)
Patricia Neibel, last inaugural MLT council member, dies at 97

The first woman on the council lived by the motto, “Why not me?” — on the council, at a sheriff’s office in Florida, or at a leper colony in Thailand.

To the amazement of onlookers, flames shoot out the exhaust pipes on Les Sanders’ black 1950 Mercury Coupe as he drives up and down Colby Avenue with many others in classic and custom automobiles during one of the many popular Cruzin’ to Colby events held each summer in Everett. (Dan Bates / The Herald)
Cruzin’ to Colby has ‘100 years of cars’ showing off in downtown Everett

Last year, over 40,000 people came to the free event, a Memorial Day weekend tradition for nearly 25 years.

N3054V accident site. (Alaska State Trooper Photo)
Lake Stevens pilot, who lived ‘Alaska dream,’ died in Fairbanks crash

Former Snohomish County lawyer Harry “Ray” Secoy III, 63, worked as a DC-4 pilot in Alaska in the last years of his life.

Support local journalism

If you value local news, make a gift now to support the trusted journalism you get in The Daily Herald. Donations processed in this system are not tax deductible.